Motherless six-year-old looks at the World in 2020

The 13th century poet, Rumi asked, “Who looks out with my eyes?” Lately, it has been my 6-year-old self.

When I was 6, a bad thing happened and I nearly died. I was hurt bad physically, but much more deeply in my heart and my soul. For a while, I was drifting away until the loving care of my Aunt Mae pulled me back and healed me up with nothing more than a few herbs, a tin bath tub and raspberry pie.

By the time, I returned home, I had no memory of what had happened. Mae had taught me to put the pain away in the inner-most doll of a series of Russian dolls. And under her care, I learned to read the whole of the first Dick and Jane book and add numbers all the way to 10. I had missed almost the entire month of September, but I was way ahead of the other kids. On the December report card, I came first.

I didn’t work my way down to that innermost Russian doll for 60 years. Only then did I learn her story.

For over twenty years now I have had to return to that child and try to address her despair and depression. It hasn’t worked very well. There are dolls around my house and teddy bears, a child’s rocking chair and certainly, I have catered to her love of reading. One of my best friends is my younger sister, whose newborn croup figured significantly in the ‘bad thing’. But the 6-year-old, let’s call her Jo as her maternal grandfather did, has been subject to what is best explained by the old spiritual, “Sometimes I feel like a motherless child/ a long way from home, dear Lord/ a long way from home”. (See my memoir Never Tell  at joycehowe.com

Naturally, she has sought to attach herself to substitute mothers, and to feel equally abandoned when these people didn’t do the job. One of these has recently pointed out that I have within me the power to deal with Jo and her insatiable needs myself. It was an offer I couldn’t refuse – not that I didn’t want to.

So I began the tearful task of confronting Jo’s feelings head-on. (I have described this process.)    https://115journals.com/?s=the+cure+for+pain

I thought twice a day meditations on the trauma would fix things pretty quick. On the 4th day, I felt sufficiently together to go to the grocery store. Rude awakening. Jo was so depressed I could barely concentrate. I weighed a bag of mushrooms at the self-check-out and put in the code for whole wheat dinner rolls. I tried to walk out without paying for 2 gallon jugs of spring water. The friendly helper finally decided I was just dotty not larcenous. I unloaded my groceries into the car’s trunk and sat in the driver’s seat getting a grip.

At home, I decided that little Jo needed more conversation, so I started to talk to her – in my head, I hasten to say.

Now Jo belongs to an earlier time, September 1942 to be precise – when things weren’t going well in the war. It was not at all clear that Hitler wouldn’t win and send his bad men knocking on our door even in the province of Quebec in Canada. Children knew as much about the war as the CBC was permitted to tell us while we ate our dinner at noon and we understood how dire things were because we eavesdropped on adults in the time- honoured childhood way. That’s not to mention the school propaganda campaign that had us dragging in carts of glass bottles, tin cans, newspaper and stinky leftover fat to win the war.

Moreover, we were not only poor, we were rationed. Butter, eggs, lard, sugar and even molasses, the stalwart nutrients of any poor family were hard to come by.

As a result of this background Jo burst onto the scene full of -not grief – but wonder and curiosity. I spent a whole evening explaining – in my head. Her daddy had told her about the fact that after the war, radio would have pictures. She hadn’t believed him, but seeing it was not surprising. She had seen a refrigerator in the house across the street, but could I make ice cream like our neighbour. It was an exciting evening. Jo just would not calm down. In between these lessons, I reminded her that I was a big person now and I was her mommy. I didn’t choose to watch anything scary on television, but I did have to sing three verses of Amazing Grace. She was disappointed that my voice had got old, but it improved on the third rendition.

Today, she is quieter, but I know she isn’t going to let me bury her back inside that Russian doll and I can feel her looking out of my eyes.

Who Says Words with My Mouth

Who looks out with my eyes? What is
the soul? I cannot stop asking.

If I could taste one sip of an answer,
I could break out of this prison for drunks.

I didn’t come here of my own accord,
and I can’t leave that way.

Whoever brought me here will have to take me home.

Rumi trans. Coleman Barks. The Book of Love p. 57

 

Winter Came: aging in a cold climate

From The Double Game by Dan Fesperman

He (Bruzek) handed it back. Then, with a grimace and a groan, he worked himself into a more upright position.

“Please help me to stand. I would feel much more comfortable speaking to you from behind my desk.”

I took his arm and helped him across the room to a ladder-back chair behind a huge mahogany desk. Behind it was a wall of bookshelves, stuffed full and leaning slightly, as if they might fall at any moment.
p 313 in my overdrive program on my ipad.

I had to recline as Vlacek Bruzek was doing when Bill Cage wound his way up through the antiquarian book store in Prague to ask him questions about spy couriers during the cold war.

I had to recline and pick up Fesperman’s book because I was exhausted. It was 11 a.m. and I was exhausted because the superintendent had called to tell me to move my car for the snow plow. The older woman -only in her late 60s next to my car – was trying in vain to defrost her windows and clear the 8 inches of snow. Fortunately, I had done that the day before and had by now recovered from that exertion.

It’s worth noting that I am so old this woman is solicitous of me.

Twenty minutes later, I had to put on my boots, my furry aviator’s hat and my -30C hooded coat and go back down to relocate my Corolla. (Full disclosure the windchill was only -15, but old bodies are cold bodies.)

That was it. I was barely able to make Masala chai before I had to rest.

I never expected to grow old. Too many close calls and a mother who passed at 58. But here I am, not yet old old. Yes, it’s a thing. In less than 2 more years I will be 85 and old old. My grandmother lived to be 96, so I guess I have to follow a new paradigm.

I suppose I should remind you that if you are lucky, you too will get there. If you’re already there, you know the truth that Leonard Cohen said, ‘You can’t reveal to the innocent youth.’ Part of that truth seems to be that for every half hour of effort it is necessary to rest 30 minutes. I mean I had to go down 13 floors in an elevator, walk 50 yards, get into my car and drive it to Visitors’ parking. How can that be exhausting?

Our bodies all age differently, of course, so perhaps yours is/will be different. If your mind can’t accept that resting routine, you have to numb it down with – preferably -‘stupid’ TV. HGTV works for me, but recently my Bell TV service has been down more than up, so I turned to Fesperson’s books. These are smart books by the way. Whereas I can’t use CNN to rest with, I can use complicated books with good mysteries.

I don’t have many old friends.One, my ex-husband, Blake, passed last March as I have documented in previous blogs. https://115journals.com/2019/03/20/blake-no-more/ My sister Georgia is 6-years younger and just beginning to feel the effort/rest effect. Another friend who is 91 has recently changed dramatically, developing an edge. She was always able to keep me believing she was charming and sweet and cared deeply for me and my loved ones. Then in one single angry outburst laid waste to that idea. Blake had also become irascible in his last days, We all forgave him as we sat beside his bed of pain. Until we had to deal with the twenty years of neglect of home and finances he left behind.

Apparently, we should all assume that our brains are de-myolinating as we age and expect dementia. I’ve got Lion’s Mane mushrooms in capsule on order. fungi.com

An older real estate collapse you don’t even remember in 1995 bumped me out of home ownership. Three years ago, my landlord sold the triplex where I lived on the ground floor in a Toronto neighbourhood I had come to love. Rent increases made it necessary for me to get out of town and at my sister’s encouragement I moved to an apartment in Mississauga. It is warm – often equatorial, even in winter, well-maintained -although the elevators can be chancey, and safe – interlopers are scared of our Shanti in the front office. First responders will be able to stretcher me out and down.

At Blake’s three-story townhouse in Cabbagetown, they had to carry him bodily down the twisty, narrow stairs. He never did get set up with a hospital bed and a potty on the first floor.

So that’s been dealt with. The fact that I really am not a suburb lover can’t matter now. Anyway I am learning to love the sky in all its moods and the distant glimpse of Lake Ontario and the Niagara Escarpment where the clouds are different.

According to my mandatory driver assessments, I am able to drive. That could change or it could gradually dawn on me that spending over $500 a month on a car is too much what with the pressure of rent increases and Bell increases. Grocery delivery, Uber and patience may win out.

It’s new territory and Tennyson’s Ulysses has advised me to “To strive, to seek, to find and not to yield” https://www.poetryfoundation.org/poems/45392/ulysses

 

Dark: personal response #2

After I had watched Dark with English dubbed, I decided there was a better experience to be had and learned how to set the original German with English subtitles, as I said in my previous post. Then I went to the Internet and read several blog posts about the series. I printed 18 pages from Wikipedia, including a list of characters, who they are, and plot outlines of all 18 episodes.

I began watching again, stopping frequently to check these notes to figure out, for example, how the 1986 cop, Egan Tiedemann, fit in with the others: Claudia’s father, in uniform in 1953, FYI. That lasted until I got to episode 2 when I gave in and accepted confusion. In fact, on this second run-through even in a foreign language, I began to sort things out myself. But the best advice of all is just let it wash over you. Watch it twice if you want to but accept the fact that it’s like the ebb and flow of the ocean or the inevitable cycle of repeating events depicted in the story. Incomprehensible. But fun.

I feel a certain pride because I have observed my 24-year-old grandson watching Black Mirror and other such esoteria that way.

There are a few narrative problems with the series that you will have to accept as well.

When I was a child, there was a popular country/western son which proclaimed, “I’m my own grandpa”. It detailed the convoluted mating/marriage history of the singer’s hillbilly family, not so unlike present-day convolutions of divorced and recombined contemporary families. By carefully tracing his lineage, the singer comes to this conclusion. (I myself had a great grandmother who was also my great aunt.) This relates to Charlotte Doppler’s burning question. She finally meets her father as she searches through the artifacts in her adoptive grandfather’s clock shop. Who is her mother, she demands. He assures her that her mother loves her, implying that the mother is alive. She is and actually feels very close to Charlotte, but you get a prize if you figure out who this is before the big reveal.

Then there is Jonas Kahnwald’s discovery, which puts quits to his love affair with Martha Nielson, despite the fact that they are a ‘perfect fit for each other no matter what anyone says’. But the good news is that his discovery also explains the otherwise inexplicable suicide of his father Michael.

Then there is the puzzle of how Alexander got to be a Tiedemann, when we know that Claudia is the only Tiedemann offspring and her only child is a daughter.

Of course there is the burning question of where the disappearing children and adult go and sometimes return from radically changed or altogether dead.

This brings us to the whole question of time.

Okay, so let’s suspend our disbelief and accept time machines. But FOUR different time machines! Even in 1952, someone is trying to build a transporting chair, which has deleterious effects on its test subjects, even leaving out the bad taste wallpaper on the prison bunker. Then there’s the cave, which was always problematic, but became even more so after an incident at the nuclear power plant. If you find yourself in 1921, don’t even go there. The passage isn’t ready. Then there’s the brass thingee in a wooden box, which Charlotte’s grandfather built, before he first saw it. I know. Cold compresses help. Finally, there is the GOD PARTICLE, which looks more like a hairball your cat spat up if it were possessed.

And all of the people desperately trying to traverse time have the same goal to save the one they love by, incidentally, saving the world from the apocalypse. Some of these people describe others as the White Devil or evil incarnate, and the describee returns the favour.

And who the hell is Adam? We know his disfigured visage has resulted from time travel. But how did his soul get that way? What unforgettable event warped him? Did he actually cause it himself? And how does he relate to our innocent hero, Jonas? Jonas, who’s lost his father and his girl and who’s mother was never much of a prize.

And what of Ulrich, that rascally adulterer, who hasn’t turned out to be any better at finding lost boys than Egon? Gets a little impatient with his over-worked wife and look at the karmic pit he digs for himself.

As for Mikkel, his lost son – there’s a problem getting him back to 2019 and his over-worked mother. If he returns, others will never have been.

As my Aunt Mae taught me – first rule of seers and prestidigistators: don’t try to change events that you see are going to unfold. Such a change will have repercussions, you cannot foresee.

The only way the future can be changed is by changing the inner being.

Will season 3 wise up to this?

 

Blake’s Progress

That night, when you escape the fear of snakebite
And all the irritation with the ants, you’ll hear
my familiar voice, see the candle being lit,
smell the incense and the surprise meal fixed
by the lover inside all your other lovers.

Rumi trans. by Coleman Barks (Rumi, the Book of Love p.178)

This is the 39th day after Blake’s passing, 39 days during which he has moved through the bardo. He still has 10 to go. But now, his spirit visits us only for the briefest pinpricks of time, although he has found his way from Toronto to the Kern County mountain where his daughter lives, if only momentarily.

He is no longer bothered by the snakebite of Canada Revenue nor the ants of tax installments. He has left all that to me.

When I give way to tears, I say, “You’ve gone and left me here.” You, whom I could count on for comfort, even if you couldn’t remember Paris.

Several of us -far-seers or freaks – see him walking away as he de-materializes. I catch a glimpse of his back foot, a bit of sock above his size 10 shoe as he pushes off his toe. He is almost gone. (But does he have a cell phone in that shoe? 115journals.com/2019/02/08/place-your-phone-in-your-shoe-and-move-forward/ )

You’ve left me with all this trouble, I whine. All the traumatic past, all the chaos of the present. Doesn’t matter. Apart from generalized kindness, you were never any real help, never a fighter, vague, absentminded, not really present, tight with your money – mostly, although you did all right by Alice according to your line of credit.

You thought I was your crazy wife, but you outdid yourself choosing ever crazier partners and left me with the fallout.

So, go on boy, find your home. Maybe it will look like Yorkshire before the war, and you can go on rambles across the moor or spend a sunny day at the shore. Even England can be sunny in heaven.

Even a lost English boy can go home.

See 115journals.com for the series on Blake’s last illness and his passing.

Grieving for Blake: a ghostly affair

Persistent readers know that I have been documenting the demise of my ex-husband Blake here at 115journals. I’ve told of his remarkable 8-year survival with stage 4 prostate cancer, and lately his decline as he began to lose his grip on his perch. He passed away last Monday.

We have been divorced for forty years. We were married for only nineteen. We had two children, who are themselves middle-aged now. To protect their interests, I agreed to act as his executor. I knew it was a bad idea, but I wasn’t aware that I would be chief mourner and ghost-whisperer as well.

When it comes to Kubler-Ross’s  seven stages of grief, I’m a rapid cycler.

Saturday, I set up a little altar in the loving spirit of letting him go, or to be precise, getting him to go. He had turned up in Georgia’s bedroom at 5:20 a.m. in his hospital gown, trailing his blue hospital blanket, confused but vividly Blake. A few days later, Georgia’s daughter jumped off the floor and screamed as something brushed past her in a doorway. Admonitions to go to the light, to go find Leyla, his second wife, fell on deaf protoplasm, as did a final plea to go find his pet Sheba Inu.

In my place, his presence was more diffuse and business-like. He has left me to file several years of income tax, as well as deal with Alice, his resident gold-digger. On Saturday, that seemed charmingly chivalrous, so I set up an auxiliary shrine on the dining room table. As a Taoist, I keep a family shrine with pictures of my people, past and present, Kwan Yin, the Mother, Buddha and candles. I put a picture of 23-year-old Blake in his graduation gown, his obit, a book of Rumi poetry, a dozen tea-coloured roses, incense, Kwan Yin, Buddha and lit bees wax candles. It was the Saturday after his passing, the day we would have had his funeral if he hadn’t opted out of such ritual. I read him Tennyson:

Sunset and evening star
and one clear call for me
May there be no moaning of the bar
When I put out to sea.

Then I got on with my own taxes.

In the evening, I sat down to finish watching The Girl on the Train on Netflix. I had read the book some time ago, and, although I had forgotten it mostly, I knew I hated all three neurotic women and especially the drunken protagonist, who just wouldn’t let up on her ex’s new wife and may have killed her neighbour. About an hour later, my mood had swung from loving a farewell to dear Blake, to get back here: I’ll kill you myself. For my lovely Blake was every bit as good at gas-lighting as Tom, the husband in the story. We – ex-wife, daughter and step-daughter – had compared notes at dinner one February night when the family had travelled from near and far to say goodbye to papa. And he wasn’t beyond blackening each of our names to the others. Then, of course, there was the question of Alice, his latest triumph, 45-years younger, who wouldn’t let us in to see him without a hissy fit, and who had been helping him work his way through the home equity line of credit at a good fast clip.

I repurposed the altar in the name of love and told Blake to get lost.

So here I am, middle of the night, suddenly awake and sobbing with grief. I knew him longer than anyone still extant. I may have loved him best. I certainly hated him best.

He’s gone. I can’t call him up to lament about one ‘child’ or the other. I can’t depend on his caring as much as me. And no, I can’t tell Blake – whatever – anymore.

He believed death was the absolute end. There was nothing after.

In that case, settle down, Boy.

 

Go Gentle or Rage: two ways of saying good night

And you, my father, there on that sad height
Curse, bless me now with your fierce tears, I pray
Do not go gentle into that good night
Rage, rage against the dying of the light.

Dylan Thomas

Many people visit this blog –115journals.com – for one reason to get some help understanding Eleanor Catton’s enigmatic novel, The Luminairies. Ms. Catton has not expressed an opinion on my interpretation, and if she decided to do so now, I would probably not get it, just as I can no longer answer questions about the book itself. https://115journals.com/2018/09/08/what-i-once-knew-anglo-saxon-algebra-and-the-luminaries/

Others of the 300 followers catch more recent posts in their Reader or by email. Some have become familiar with my family and its ups and downs. The cast of characters include my sister Georgia here in the western suburb of Toronto and her tribe of children, my Brussels’ brother, my California daughter – she of the differential diagnosis, https://115journals.com/2018/11/08/all-is-well-differential-diagnosis/ and, of course, Blake, my ex-husband. https://115journals.com/2018/09/07/good-eggs-john-burt-and-me/

The bottom line is that Blake’s losing his grip on his perch.

Blake still perching

Returning from my recent sojourn in the Kern County Mountains of Southern California, I found him mostly confined to his third floor bedroom in downtown Toronto. It had come on him suddenly, he confided. He hadn’t had time to see to things, do that Swedish death-cleaning thing, for example.

It’s a religion to me, constantly weeding my possessions, my unworn clothes, books I no longer read, geegaws that never see the light of day, papers. I spent a morning shredding as I tried to get oriented back into my life here in Mississauga.

Blake mentioned this because he is going to leave me, his executor, to deal with a house crammed full of stuff.

I refrained from pointing out that he had had stage 4 cancer since 2010. On the other hand, he had been sailing and cruising and zip-lining through jungles and zooming down water slides until this last summer. And he has always expressed the desire to live forever. He has that optimistic turn of mind.

It appalls me. But then I have grown old in spite of that. https://115journals.com/2018/12/27/when-i-get-older-the-hundred-year-old-man-who-climbed-out/

Turns out, he’s been so busy and then so suddenly sick that he now needs a small army of relatives to clear enough space and clean enough space for him to enjoy what’s left of his time on his perch. The troops are rallying. Just don’t suggest cleaning crews. It’s more piecemeal and personal. “What is this pile?” is the current question. Could be important. Could be wash.

Then there’s the pup, a sheba inu. “Say goodbye to her,” Blake advised, implying she might be gone next time.. I thought to myself, “I said hello and  got no sign of life.” I bent down to bid the pup farewell.

Today we got the vacuum working and took up the worst of the animal hair and the autumn leaves and pet food around the bedroom. (Yes, there is a balcony.) We changed the sheets. Do many people store their sheets in tightly wound balls in linen cupboards?

Our son Daniel has pledged to install a grab rail over the tub/shower and hand rails on the steep, narrow stairs.

Our daughter and our younger grandson plan to fly out of LAX as soon as his expedited passport comes through.

Blake’s step-daughter beat us all by getting there last week and pledges to carry her weight.

Blake is very grateful to me and happy when my brother Facetimes from Belgium, but he is grumpy with his companion. He was only moderately pleased when the U.S shutdown ended today. He would be happy if only he could outlive Trump’s reign, which he sees as a threat to the world order established by the Second War, his war, the war he was refugee-ed out of at the age of 5, without parents.

In our 25 years together we were intellectual snobs. Orphaned and outsiders, we said, “Living well was the best revenge.” Then after Europe and the energy crisis, “Eating well is the best revenge.” In the 40 years since we parted, our paths diverged apparently.

I said earlier in the week, you’re going to get to go home. You haven’t been home for a long time. No, he didn’t believe that. Dead was dead. “And you a physicist!” I said. “A physicist who believes that all this loving energy can be destroyed?” “Well,” he allowed, “it is an unbelievable miracle that the human race evolved out of nothing.” “I always thought that about our children,” I said. “They came out of nothing but love.”

They are still coming, fourth generation beings who will carry us into 2100.

What the Candle Said: caring and melting

I am reposting this a year later because I finally get it – a great liberating acceptance of what seemed like suffering and loss.

A candle as it diminishes
explains, Gathering more and more is not the way.
Burn, become light and heat and help. Melt.

Rumi (trans. Coleman Barks ‘Light over this Plain”

The candle gives good advice. Surely, such advice needs to be treated seriously, not ironically. Easy enough to post. Might even help somebody on her way. And there’s even a free candle picture to pretty things up.

But then – gaaaaaa – you find yourself screaming, “I’m melting! I’m melting!” like the Wicked Witch of the West doused with a bucket of water.

Age was melting me before I undertook this project. For the last four years, I have paid a younger woman to clean my apartment every two weeks, first Teresa and then Louisa. I could have been Teresa’s mother and Louisa’s grandmother, but these women brought not only their Portuguese cleaning skills – lots of vinegar and elbow grease – but also their warmth. They looked out for me.

Then I got the call. Invalid 1 was immobilized by pain and might or might not be mortally ill. What’s more Invalid 1 had assumed the care of Invalid 2 during the summer. Although she is in good health, Invalid 2 is even older than me and about to become a nonagenarian.

We’re short on available help as most families are these days. In my day, as we oldsters say, there were spare spinsters about the place, who would come and sleep in the single bed or on the couch and take on the nursing and housework. Not an unattached auntie to be found in our case, not even a biddable if somewhat challenged cousin. Moreover, we are scattered across the continent and those of us in healthcare are gainfully employed.

So I sallied forth. I flew out the next day (115journals.com/2018/10/24/mother-on-broomstick-celebrates-legal-weed/). Like many other mothers, I had already had practice answering such calls. I picture these mothers driving alone in cars, on planes, on charabancs, on buses and trains, sharing space with life stock when necessary, beating a path toward the need.

Invalid 1, my daughter, had been making the shorter trip to Invalid 2, her mother-in-law, daily, for several months and she had developed a real knack for it. She sort of sank into the whole experience. Patience wasn’t even required anymore. It took as long as it took, getting the house in order, checking the fridge for spoilage, making lunch, sitting and listening to the older woman, watching Dr, Phil at 3 o’clock.

Too bad this zen-like helper was now bedridden and had become the lump on the couch, as I affectionately called her.

For the first while, I saw my main task as taking care of her. Her mother-in-law, meanwhile drew on her own strength to manage better than we thought possible.

As time passed, my daughter’s diagnosis became clearer. (115journals.com/2018/11/08/all-is-well-differential-diagnosis/) and surgery got her on her feet. In little more than a week, she was back looking after Other Mom, while I watched in awe. And yes, she got what the candle was saying.

Me? I am melting. My share of the duties doesn’t seem onerous. I don’t even have to cook. Hubby does that. I do the wash and try to keep the place moderately clean. I go to appointments with her – she has to have a second surgery. I used to do all these jobs, work a full day and even give the occasional nod to my children. It’s humbling to take measure of my diminished ability.

The thing is, as soon as I arrived, even though she thought she had a dire diagnosis, she began to laugh. She was better just because I came.

And that is what love is after all. You give what you can. If there’s nothing left, you’re all the better for it.

All is Well: differential diagnosis

115journals.com/2018/10/06/all-is-well-another-contradiction-to-despair/

In the middle of October, I posted “All is Well”, another contradiction to despair. Events overtook me and I posted “Interval”, promising to post “All is Well: part 2”.

I will begin by explaining the difference between renal cell carcinoma and fat poor angiomyolipomas, so far as I understand it. The latter, also referred to as AMLs – not to be confused with Acute Myeloid Leukemia (that’s someone else’s nightmare) – are made up of blood, muscle and fat. Ours was spotted incidentally during an unrelated CT scan. It was a 4.1 cm. mass in the right kidney.

Did you know renal carcinomas can be diagnosed visually? So three weeks ago we got the bad news – kidney cancer. But wait a minute, the real target had been a 3.8 mass in the hip on the same side. Could be metastatic kidney cancer.

Honestly did not know I was capable of howling loud enough to alarm my neighbors.

But, stat, there was an MRI guided biopsy of the hip lump. Hip tumor not cancer. Rather a schwannoma, a tumor of the nerve sheath, in this case on the sciatic nerve and, in this case, benign.

Can there be kidney schwannomas ,we asked the Google gods. Possibly.

Let’s do another scan, stat of course, to see what is going on in adjacent organs – I imagine this one as High Def – and get a good look at the kidney interloper. Two days later, a voice mail message. Not cancer, but a fat-poor AML.

We had got used to the worst – every day terror, bleak future, all that good stuff. Hearing the no-cancer news, I had to put my head between my knees. One of us fell to cursing. The patient cried.

For three weeks, we had followed doctor’s instructions: prepare for the worst, maybe 17% survival in 5 years, gone in her early 60s. Then, when it was just kidney cancer, not metastatic we had a 96% chance. Now, we were back to 100%, or as close as you can be, given traffic on California freeways. We should have been happy, but we went around muttering, “It’s Tuesday, it must be cancer.” “It’s Thursday, it certainly isn’t.” “It’s Friday…”

We didn’t trust any doctor and certainly not a radiologist. The current one still wanted to call it cancer, despite a visible few fat cells. What we read, and we read everything, told us carcinomas had no fat. A radiologist in 2012 had reported that a tumor of 3.8 cm appeared on the left kidney. We ordered the CD record of it. Definitely, on the right. The radiologist had reverse-read the kidneys. If he had not, we would never have fallen for this funny little trick Nature sprang on us.

Lucky us. Lots of patients have discovered only after they’ve lost a kidney that they didn’t have cancer.

This morning, the urologist assured us that the offending growth will be biopsied when it is removed. When will that be? Well, first the main player, pain-wise, has to go. Simple to cut a schwannoma off a sciatic nerve, just don’t cut too close or -bingo- a different crisis here in Kern County. Recovery will take 2 days. When the patient feels better, she can call and get the kidney surgery date.

The issue of getting something to kill the pain is another whole drama. Governments make doctors’ lives hell when they prescribe opiate-type drugs. As far as I can see their draconian rules have not made a dint in the opioid crisis as yet. The neurosurgeon breezily suggested a pain clinic. Wait times for pain clinic appointments are at least 30 days. We live near an opioid addicted town, we might get lucky on a street corner. But, no, the urologist came through for the next 5 days. Not the same effective painkillers, not nearly as effective and rife with side effects. Weeping over the phone to the pain clinic got us an appointment in 5 days. And this is a temporary need, until surgery, for someone who can’t get up off the couch most days.

I am Canadian. We have the same struggles with diagnosis and waiting for surgery. I once waited for 7 weeks to have an intestinal carcinoid removed. I could eat only fluids or runny pureed veg. Great slimming diet. I was prescribed liquid morphine. But I absolutely never had to think about cost. Not true in California, even with Medicare.

This is a wonderful country, don’t get me wrong. Driving up the I-5 from the neurosurgeon’s, I remembered that, if California were a country, it would be the 5th largest economy in the world. But *#@! it, why doesn’t it take care of its people. My great nephew in Belgium had a 15 hour surgery on his brain, lived to tell the tale and got no bill.

Next up: insomnia of 10 months duration.

“All will be well and all will be well and all manner of things will be well”

 

Interlude: between two all-is-wells

This post is an interlude or intermission between my last blog post “All Is Well” and my next one “All Is Well: part 2”.

https://115journals.com/2018/10/06/all-is-well-another-contradiction-to-despair/

So Edgar comes on stage in Act 4, scene 1 of King Lear, disguised as the mad beggar Poor Tom. He is all but naked and covered in mud, a disguise to prevent his capture and execution. His illegitimate brother Edmund has framed him, convincing their father, the Duke of Gloucester, that Edgar is plotting to commit patricide.

Let us note that Edgar actually loves his misguided father very much.

Edgar is out on the heath, the treeless moor, as a vicious storm gathers. He says a few words reconciling himself to his abject state, when suddenly an old man leads Gloucester into view. Gloucester is blind. His eyes have just been gouged out by Cornwall, Edmund’s ally.

Edgar says, “Oh gods! Who is it can say ‘I am at the worst’.? I am worse than e’er I was.”….
“And worse I may be yet. The worst is not/ So long as we can say ‘This is the worst’.

The Old Man wisely hands blind Gloucester over to Poor Tom, for in aiding the Duke, the Old Man is risking his own life.

Gloucester observes “Tis the times plague when madmen lead the blind.”

(Let’s ignore the relevance of that remark to our own time.)

In other words, in my earlier blog post “All Is Well: another contradiction to despair”, I got myself all wound up about what seemed to be the worst possible circumstances. It took only a few days for life to teach me otherwise.

It will take a few more for me to process this new insight enough to write “All Is Well: part 2”.

As usual, I will draw on my sister Georgia’s support. She is gobsmacked by events as well, but no less convinced than she ever was that, to qoute Hildegard of BIngem, “All shall be well. And all shall be well. And all manner of things shall be well.”

The #%*$ universe is unfolding as it should.

Hope: contradiction to despair #7

Hope is the thing with feathers
That perches in the soul
And sings…

Emily Dickensen

It took me a while to find this poem because I thought it said, Hope is a thing with a broken wing. A Freudian slip to be sure.

I started thinking about hope when Ian Tyson’s rendition of Somewhere Over the Rainbow came up on shuffle as I pulled into the No Frills parking lot. I first heard that song at age 6 when I saw The Wizard of Oz in 1942.

We Quebec children were not usually permitted to go to movies, ostensibly because of a fatal movie theater fire, but more likely because the Catholic Church held sway over the province’s morals and saw movies as corrupt. An exception must have been made in this case.

I was already enthralled by the black and white footage of the coming storm when Dorothy arrived in the Land of Oz and things burst into color. And then the music began.

I had found my answer.

The tornado of my home life offered no escape, no shelter. The cellar was just another place of danger. But now I knew that over the rainbow, there was hope and someday, like the bluebird, I would fly there.

It worked. More or less.

Much later, I learned that those who had five or even ten year goals were more likely to be happy and successful. At crucial points in my career, my personal life and my health care, I was asked about such goals. In other words, ‘Articulate your hopes.’ My instant response was “Beats me’, but, of course, I repressed that and made shit up.

So now I am old, not old old. I won’t be old old for 7 or 8 years, not even middle old, which I will be in 3 years. But old nevertheless. What are the possible goals of a hopeful 82-year-old? My immediate response, ‘Living to be 83’.

Until recently, I harbored a broken-winged hope that the world was evolving and becoming a better place, little by little. And that I had played a part in that.

Look what happened.

Now I’m reduced to the idea that life on this planet of pain is pendulum in nature – two steps forward, one step back. Or is it the other way around?

Really, this blog post is falsely advertised. It’s the old bait and switch. I have no faith that there is hope nor that it contradicts despair. In fact, hope of the over-the-rainbow kind is too broken to hold in hand. Yet I get up, stand up and go on, with no expectation of reward. Is it from some old hopeful habit or just an obstinate refusal to give in?

Wishful metaphors make fine poetry, but hope is a 4-letter word – patient, resolute, strong and defiant in the face of darkness.